Ben Bunting’s son, Kobi, passed away just 29 hours after he was born with Edwards’ syndrome, an incurable genetic condition.

 

Following an uncomplicated pregnancy, both Ben and his wife, Mel, were left in shock when they were told by doctors that their son would not survive for very long.

 

After spending just 29 hours in the arms of his parents at Hull Women and Children’s hospital, East Yorkshire, little Kobi passed and his father decided to pen a letter to show that the youngster “will always be with us in our hearts and memories”.

 

 

Ben’s letter reads:

 

“To Kobi,

 

The day I knew you were coming I was the happiest Daddy on earth. And when you came out of Mummy's tummy my Love for you was over the moon. My special little guy was here but Daddy couldn't hold you or kiss you because there were problems and you had to be rushed away to be taken care of. This made Mummy and Daddy very sad because we did not know what was going on. We spent a few hours apart (which felt like forever) before we could see you but when we saw you we realised how poorly you really were. You looked so small and fragile, I felt so helpless all I wanted to do was hold you tight and not let you go and make everything better but I couldn't.

 

We were told by some lovely doctors and nurses that you had trouble with your heart and lungs - this made Mummy and Daddy really sad. And after a tough night of you fighting you were tired and you felt like you were slipping further away from me. Then it came to the time that the medicine wasn't working and you wasn't getting better. This was the time we knew we were gonna lose you forever and the nurse made sure that Mummy and Daddy could hold you for the first time and this made Daddy really happy because that's all I wanted to do.

 

Mummy held you first, you laid in her arms all relaxed and gentle while Mummy held your hand and stroked your head and Daddy stroked your feet. Then it was Daddy's turn to hold. And when I held you in my arms my heart was filled with so much love and joy. It felt like it was going to explode with so much happiness.

 

And then it was time you had to leave us but you will always be with us in our hearts and memories and I will always love you forever and always and I want to thank you for the most amazing cuddle that any Daddy would ever ask for.

 

Love you forever and always.

Daddy [sic]”

 

 

Talking about her heartbreaking loss to the Daily Mail, Mel said: “Many babies with Edwards' syndrome are stillborn. I feel so proud Kobi was so strong and fought to be here so we got to meet him. When he died we knew it was an end to his suffering. He was like a little doll. He was perfect.”

 

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