Nurses at Great Ormond Street Hospital organised a beautiful surprise for Charlie Gard and his parents, Connie and Chris, as the decision of the European Court of Human Rights looms.

 

Today marks the final leg of the couple’s fight to keep 10-month-old Charlie alive, as they wait to learn whether or not the court will consider their case.

 

Up to this point, the highest courts in Britain have ruled in favour of the hospital’s medical experts, who are calling for Charlie – who has a rare genetic condition – to be taken off life-support, to ‘die with dignity’.

 

In one final appeal, Connie and Chris called on the European Court of Human Rights to extend Charlie’s treatment, so that they can bring him to the States for experimental therapy. They have already raised the £1.3 million they will need to bring him.

 

With so much riding on the court’s decision today, the thoughtful nurses at Great Ormond Street organised a special and poignant surprise for the family – a picnic on the roof of the hospital.

 

 

In a photo shared to Charlie’s official Instagram account, Connie and Chris are seen cuddled up to their son, who has been made comfortable with blankets.

 

Connie told the Mail Online: “Charlie was awake the whole time. It was wonderful for him to feel the sun on his face and the wind in his hair.

 

“We put on some music, and Chris and I lay down next to Charlie. For the first time in months, we felt like a normal family.”

 

The latest heart-warming update comes just a day after Connie shared yet another powerful image – one showing Charlie awake and looking at the camera.

 

 

@dailymail - Their poignant family picnic on the roof of the world-renowned London hospital was organised as a surprise for them by nurses moved by the devoted parents’ plight.Miss Yates, 31, a carer, said: ‘Charlie was awake the whole time. It was wonderful for him to feel the sun on his face and the wind in his hair.‘We put on some music and Chris and I lay down next to Charlie. For the first time in months we felt like a normal family.’It was a rare break away from the tension of hospital wards and courtrooms for the young family. Speaking for the first time since the Supreme Court decision last week, Miss Yates said she and Mr Gard, 32, a postman, felt they had been ‘terribly let down’ by the British courts.She told the Daily Mail: ‘We feel terribly let down by the UK justice system. We are still shocked that the Supreme Court wouldn’t even hear our appeal.‘The doctor in America says he believes there is no reason why the therapy won’t work for Charlie. Any parent would battle on as we have. We can’t give up knowing there is a treatment available which could save his life.’

A post shared by #charliesfight (@charliesfight) on

 

“A picture speaks a thousand words!” she wrote, as she went on to quote the seemingly inaccurate judgment of one of the courts.

 

“As quoted from the judgment…’He is not consistently able to open his eyes enough to be able to see. Indeed, this leads to the difficulty that his brain is failing to learn to see.'”

 

Hearts go out to Connie and Chris, and thousands of people have pledged their support to them as they await the court’s final decision.

 

We will keep you updated as the decision comes in. We are thinking of the family at this time.

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